A recent discussion on social media has shed light on a little-known medical condition that may be met with laughter rather than understanding by some general practitioners (GPs). Doctor Suraj Kukadia, a physician with the National Health Service (NHS), addressed this issue after a follower inquired why some doctors seem to dismiss or laugh at her symptoms.
This inquiry specifically referenced a condition known as retrograde cricopharyngeus dysfunction (R-CPD), colloquially referred to as “no burp syndrome.” Individuals with this condition experience a lifelong inability to burp, which can lead to significant discomfort, including pain, bloating, and nausea. Despite its serious implications, R-CPD was only formally recognized in 2019, when the first scientific paper was published.
Dr. Kukadia, who is also known as Dr. Sooj, explained that many physicians may not be familiar with R-CPD due to its recent recognition. He stated, “The majority of doctors have probably never heard of it. It’s not something that I was ever taught about in med school.” His awareness of the condition was prompted by a close friend who has struggled with it without knowing its medical name.
The doctor recounted how his friend’s experience highlights the challenges faced by those with R-CPD. “When he’s had some fizzy drinks, he has to then shove two fingers down his throat in order to make himself gag and therefore burp and release that air,” Dr. Kukadia noted. This method, while effective for some, underscores the discomfort and inconvenience associated with the condition.
In response to the initial inquiry, Dr. Kukadia emphasized that the lack of awareness surrounding R-CPD is likely why some doctors may react with laughter. He remarked, “It’s not something that is very widely known about.” His insights resonated with many of his followers, who expressed relief in discovering they were not alone in their symptoms.
Understanding Retrograde Cricopharyngeus Dysfunction
According to Yale Medicine, the symptoms of R-CPD extend beyond the inability to burp. Patients may experience abdominal and chest bloating, excessive flatulence, nausea, gurgling noises from the neck and chest, and a fear of vomiting (emetophobia). These symptoms can significantly impact daily life, leading to distress and anxiety.
Treatment for this condition often involves the use of Botox. Yale Medicine explains that a Botox injection into the cricopharyngeus muscle can alleviate symptoms. This procedure can be performed either during an upper esophagoscopy under general anesthesia or through electromyography (EMG) guidance.
A study on the effectiveness of Botox for R-CPD revealed promising results. After receiving the injection, over 99 percent of participants reported being able to burp, and 95 percent experienced substantial symptom relief. For some, these positive results lasted up to a year, while others found their relief to be permanent.
Dr. Kukadia’s recent engagement on social media not only highlights the importance of awareness for lesser-known medical conditions but also underscores the need for continued education within the medical community. As patients share their experiences, it becomes clear that understanding and empathy from healthcare providers can greatly improve the patient experience for those with conditions like R-CPD.
