Jesy Nelson, the former member of the popular group Little Mix, has garnered support from friends and her ex-partner Chris Hughes following the emotional revelation regarding her twin daughters’ health. On January 4, 2026, Nelson shared that her daughters, Ocean Jade and Story Monroe, have been diagnosed with Spinal Muscular Atrophy (SMA), a serious genetic condition that leads to progressive muscle weakness and can severely affect mobility and respiratory functions.
Details of the Diagnosis
In a heartfelt video, the 34-year-old singer described the past three to four months as “gruelling” as she and her partner Zion faced numerous medical challenges. The diagnosis of SMA, particularly type 1, means that the twins are likely to encounter significant difficulties, including challenges in walking and breathing. Nelson tearfully explained that the condition affects every muscle in the body and can lead to life-threatening complications if not treated promptly.
Nelson emphasized the urgency of treatment, noting that “if it’s not treated in time, your baby’s life expectancy will not make it past the age of two.” Great Ormond Street Hospital has been instrumental in providing care for the twins, who were born prematurely on May 15, 2025, after a difficult pregnancy that included a stay in a Neonatal Intensive Care Unit (NICU).
Outpouring of Support
In response to Nelson’s announcement, a number of her celebrity friends and former partner Chris Hughes expressed their solidarity. Hughes commented on her post, stating, “A warrior Jess. Be easy on yourself. Sending prayers to you all, everyone behind you guys.” Other well-known personalities, including reality star Jess Wright and singer Sam Bailey, also offered words of encouragement and love, highlighting the community’s support during this challenging time.
Nelson shared that her mother was the first to notice the twins’ lack of movement, prompting further medical examinations. After a series of appointments, the diagnosis of SMA was confirmed. “Once the girls got treated, it was a very rapid process because time is of the essence with this disease,” she stated, expressing her gratitude for the treatment plan that has been initiated.
Despite the overwhelming circumstances, Nelson remains hopeful. She expressed her belief that her daughters could defy the odds with appropriate support and care. She also aimed to raise awareness about SMA, stressing the importance of early diagnosis and the signs to look for, such as floppiness in babies and rapid breathing.
As the family navigates this difficult journey, Nelson continues to advocate for awareness about the condition, sharing insights into the emotional toll and the realities of being a parent to children with special needs. Her candidness in discussing the challenges has resonated with many, emphasizing the need for understanding and compassion for families facing similar situations.
Jesy Nelson’s experience serves as a poignant reminder of the strength required in the face of adversity and the profound impact of community support during trying times.
